What is the patient experience?

In episode 05 “What is the patient experience?” our Flow team takes a look at patient stories from three different menstruators:

How does a doctor miss a woman’s second vagina? 

What is a near-death first period experience like?

What does it look like to face racism when seeking treatment?

Christie and Jessica speak with Brittany Jacobs, Michelle Ryzak, and Teonna Woolford about their varied experiences of extreme menstruation.

Show Notes:

In episode 05, Christie and Jessica focus on the patient experience. They speak with Britany Jacobs about uterus didelphys; share some of their conversation about extreme first menstruation with von Willebrand's disease patient MIchelle Ryzak; and talk to Teonna Woolford - patient advocate on a mission to shine light on sickle cell’s impact on reproductive health.

 

LINKS:

 

@britsburg on Tik Tok: https://www.tiktok.com/@britsburg?lang=en

 

What is Uterine Didelphys? https://www.nationwidechildrens.org/conditions/uterine-didelphys

 

Michelle Ryzak: https://www.howtotalktoyourdoctor.com/blog1/patient-spotlight-meet-michelle

 

Teonna Woolford: https://www.howtotalktoyourdoctor.com/blog1/patient-spotlight-meet-teonna

 

Teonna’s organization “SC RED”: https://sicklecellrhed.org/

 

Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth

 

FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/26KF

 

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