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A Bloodstream podcast

GLOBAL HEMOPHILIA REPORT

Led by science, curiosity, and storytelling, the Global Hemophilia Report is a once-monthly podcast featuring data insights and key commentary from opinion leaders, leading researchers, and expert clinicians- alongside untold stories from labs, clinics, and patient homes- that, together, guide listeners on an audio journey through the foundational and investigative science driving the hemophilia experience, globally, right now.

Global Hemophilia Report Season One Summary

Review the Season One Summary Deck here.

 
 
 
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Our Latest Episodes

Global Hemophilia Report Blog
World Hemophilia Day
World Hemophilia Day
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
Hemophilia Gene Therapy Redux – The End of the Beginning?
Hemophilia Gene Therapy Redux – The End of the Beginning?
PTSD & Hemophilia
PTSD & Hemophilia
The US National Research Blueprint (NRB)
The US National Research Blueprint (NRB)
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
Sexual Health- An Unaddressed Need in Comprehensive Hemophilia Care
Sexual Health- An Unaddressed Need in Comprehensive Hemophilia Care
Mild Hemophilia A: A Misnomer?
Mild Hemophilia A: A Misnomer?
Telemedicine for the Care of Hemophilia: What Do We Gain And What Do We Lose?
Telemedicine for the Care of Hemophilia: What Do We Gain And What Do We Lose?
Social Drivers of Health in the Bleeding Disorders Community
Social Drivers of Health in the Bleeding Disorders Community
Hemophilia Camps - Evidence of Benefit
Hemophilia Camps - Evidence of Benefit
Sports, Fitness & Hemophilia
Sports, Fitness & Hemophilia
Barriers to Research in Hemophilia
Barriers to Research in Hemophilia
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity - Part 2
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity - Part 2
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity
Where does research go from here? S1 Finale!
Where does research go from here? S1 Finale!
Pain in Hemophilia - Part 2 - Exercise, Medication & Investigations
Pain in Hemophilia - Part 2 - Exercise, Medication & Investigations
Pain in Hemophilia - Part 1 - Prevalence, Mechanisms, and Assessment
Pain in Hemophilia - Part 1 - Prevalence, Mechanisms, and Assessment
Hemophilia B & the story of Tsarevich Alexei - Part 2
Hemophilia B & the story of Tsarevich Alexei - Part 2
Hemophilia B & the story of Tsarevich Alexei - Part 1
Hemophilia B & the story of Tsarevich Alexei - Part 1
Mid-Point Conversations: A Summary
Mid-Point Conversations: A Summary
Women with Hemophilia: Research Priorities
Women with Hemophilia: Research Priorities
Mental Health and Hemophilia in Adolescence and Young Adulthood
Mental Health and Hemophilia in Adolescence and Young Adulthood
Bone and Joint Health: Monitoring and Detection Strategies
Bone and Joint Health: Monitoring and Detection Strategies
Prophylaxis: Protection, Achievements, and Shortcomings
Prophylaxis: Protection, Achievements, and Shortcomings
Novel Therapies: Entering Uncharted Territory
Novel Therapies: Entering Uncharted Territory
Inhibitors: Prevention, Eradication, and Lived Experiences
Inhibitors: Prevention, Eradication, and Lived Experiences
Introducing the Global Hemophilia Report
Introducing the Global Hemophilia Report
 

Meet The Team

HOST: PATRICK JAMES LYNCH

Patrick James Lynch is a content producer, filmmaker, patient advocate, small business owner, and the founder of BloodStream Media. He has produced and/or been on-mic for more than 300 podcast episodes since starting his first show in 2011.

 
 

SENIOR ADVISOR: DR. DONNA DIMICHELE

Dr. Donna DiMichele has had over 40 years of aggregate experience in academic pediatric hematology practice and clinical hemophilia research and, while at the National Institutes of Health, in the strategic development of novel blood science research opportunities, optimization of organizational research oversight, and creation of novel pathways to reinvigorate the blood science research workforce.

 
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