The Research Ecosystem Behind Hemophilia Breakthroughs: Funding, Mentorship, and Collaboration
Host Patrick James Lynch and co-host Dr. Donna D. Micheli frame hemophilia progress as the product of sustained collaboration and investment, not inevitability, amid an increasingly uncertain research environment. Joined by University of Michigan physician-scientist and HTRS president Jordan Shavit, University of Washington professor and bleeding disorders center director Rebecca Kruse-Jarres, and HTRS executive director Lorilyn Jacobsen-Tews, they discuss momentum in gene therapy, non-factor and longer-acting factor options, and emerging ideas like oral therapies, alongside a broader, more inclusive focus across bleeding disorders. The panel highlights shrinking federal funding, the growing importance of professional societies and foundation support, and mentorship pipelines that attract and retain investigators from student to mid-career stages. They emphasize patient partnership in defining meaningful outcomes and express optimism rooted in community, collaboration, and the long arc of scientific progress.
Guests:
Lorilyn Jacobsen-Tews
Executive Director, Hemostasis and Thrombosis Research Society (HTRS)
Rebecca Kruse-Jarres, MD
Professor of Medicine and Pediatrics, University of Washington
Executive & Medical Director, Washington Center for Bleeding Disorders
Jordan Shavit, MD, PhD
Physician-Scientist & Professor of Pediatrics and Hematology, University of Michigan
Senior Advisor: Donna DiMichele, MD
Hosted by: Patrick James Lynch
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