A Glanzmann Thrombasthenia podcast

The Bleeding Edge

A condition long observed. A burden long carried. A conversation long overdue.

Glanzmann thrombasthenia is often described as a rare platelet disorder defined by bleeding symptoms. But for patients, caregivers, and clinicians, the lived reality extends far beyond that definition.

This five-part podcast series features four immersive episodes and a culminating roundtable conversation that together examine what it means to live with GT in a system that has long recognized the condition, yet continues to grapple with its full impact on everyday life.

Through intimate conversations with patients, caregivers, and clinical experts, the series explores the gap between what is known about GT and what is experienced in real life. From daily symptom burden and care coordination challenges to the ongoing effort required to access appropriate treatment, The Bleeding Edge examines the visible and invisible weight of GT, and what it demands from those who live with it along with those who care for them.

Produced by BloodStream Media. Made possible by Hemab Therapeutics.

EPISODE ONE PREMIERES JULY 15

Mark your calendars.

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Join the Episode 5 Round Table Conversation

August 18th at 7:00 AM PST

We want your voice in the room!

Following Episodes 1-4, The Bleeding Edge wraps with a recorded virtual round table conversation bringing together patients, caregivers, and healthcare providers for a candid, no-fluff discussion about what life with Glanzmann thrombasthenia actually looks like.

This is a space for real experiences, real perspectives, and real conversation across the full spectrum of care and lived experience. Together, we’ll unpack the themes from the series and get honest about where the gaps still are in understanding, treatment, access, and support.

We’re building a conversation that hasn’t really been held this way before, and it only works if every voice is in the mix.

Participants will:

Share lived experiences, clinical insights, and care perspectives
Respond to key moments and themes from the podcast series
Join a broader conversation on visibility and progress in the GT community
Help shape a documented discussion rooted in real-world experience across patients, caregivers, and providers

Register Here

This round table conversation is in partnership with CHES Foundation and EquiPath Analytics.

Sources & Evidence Based Resources

This series draws from published literature, educational programming, provider insight, and lived experience documentation focused on Glanzmann thrombasthenia and the broader rare bleeding disorders community.

Referenced materials include:

Documentary - Coming Soon!

The conversation does not end with the podcast.

Stay tuned for the first groundbreaking documentary centered on the lived experiences of people impacted by Glanzmann thrombasthenia.

This upcoming film will document the realities, resilience, challenges, and triumphs of individuals and families navigating life with this rare bleeding disorder.

More details coming soon!

Meet Your Host

PATRICK JAMES LYNCH

Patrick James Lynch is a content producer, filmmaker, patient advocate, small business owner, and the founder of BloodStream Media. He has produced and/or been on-mic for more than 300 podcast episodes since starting his first show in 2011.

PATRICK JAMES LYNCH

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