On the latest episode of The Bleeding Edge, we're asking a question many people with Glanzmann thrombasthenia (GT) know all too well: How can something so invisible take such a visible toll on your life?

Joining host Patrick James Lynch for the first time is new co-host Amy Owen-Wyard, bringing both professional expertise and a deep commitment to the inherited bleeding disorders community. Together, they sit down with patients, caregivers, and leading experts from around the world, including Dr. Kate Khair, Dr. Sutesh Sivapalaratnam, Dr. Guy Young, Dr. Meera Chitlur, alongside patient advocates, Caitlyn Lee, Eliza, Quinn, and caregivers like Stacey McGeown, Connor Snow, and Alexandra Sullivan.

Through honest conversations and lived experiences, this episode explores the hidden weight of GT, from chronic fatigue and iron deficiency to delayed diagnoses, emotional exhaustion, and the constant calculations happening behind the scenes. Because the hardest part of living with GT isn't always the bleeding people can see. Sometimes it's everything they can't.

Whether you're living with GT yourself, caring for someone who is, or simply looking to better understand the condition, this episode shines a light on the invisible burden so many carry every day.

Co-Host:

Amy Owen-Wyard, Community Advocate, CoFounder and CEO of EquiPath Analytics

Featuring:

Stacey McGeowen, Community Advocate, CoFounder and CEO of EquiPath Analytics

Dr. Kate Khair, CoFounder at Haemnet

Eliza, Patient Advocate

Connor, Community Advocate
Alexandra, Community Advocate

Dr. Meera Chitlur, Pediatric Hematologist, Children’s Hospital of Michigan

Dr. Sutesh Sivapalaratnam, Lifespan Hematologist

Quinn, Patient Advocate

Caitlyn, Patient Advocate

Presenting Sponsor:

Hemab Therapeutics, visit hemab.org to learn more