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All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Through Our Eyes Two Disabled Dudes
Shows All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Through Our Eyes Two Disabled Dudes AboutAdvertiseContact
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Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Ryan GielenJuly 30, 2021
Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
Ryan GielenJuly 30, 2021
Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič
Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič
Ryan GielenJuly 30, 2021
Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments
Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments
Ryan GielenJuly 30, 2021
Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Ryan GielenJuly 30, 2021
Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
Ryan GielenJuly 30, 2021
Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Ryan GielenJuly 30, 2021
Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
Ryan GielenJuly 30, 2021
Episode 087 - A Rare Collection - Superheroes
Episode 087 - A Rare Collection - Superheroes
Guest UserJune 21, 2021
Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Guest UserJune 21, 2021
Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Guest UserJune 21, 2021
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Ryan GielenJune 15, 2021

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