On this episode of Thal Pals: The Alpha-Beta Revolution Podcast, recorded live at the Cooley's Anemia Foundation (now Thalassemia Foundation of America) Patient Family Conference in Chicago, hosts Nina Maria Badalamenti and Dr. Kevin Kuo explore the theme "All in the Family: Living with Thalassemia Together."

Joined by two families – Madina, her husband David, and daughter Alexia; alongside Radhika, her husband Dan, and daughter Seema – they discuss how thalassemia impacts entire households, from navigating diagnosis transitions and treatment logistics to the emotional toll on spouses, children and parents. The conversation dives deeply into stigma, with Radhika sharing how her family hid her diagnosis during the HIV/AIDS era and the liberation that came from finally opening up, while Madina reflects on overcoming shame after transitioning from non-transfusion-dependent to transfusion-dependent care. The episode highlights the power of community, the importance of provider empathy, and the hope that comes from connection and mutual support.

For more information about the Thalassemia Foundation of America, visit thalassemia.org.

SHOW DESCRIPTION

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

TRANSPARENCY STATEMENT

Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.