The Turning Point - How Madina Margeson Took Control of her Thalassemia Journey

Madina Margeson was told she was “lucky” growing up with beta thalassemia intermedia—no transfusions, no major concerns. But decades later, she discovered the reality: untreated thalassemia had been impacting her body.

On this episode of Thal Pals: The Alpha Beta Revolution, Madina shares her journey from being overlooked to becoming her own advocate—pushing for answers, finding expert care, and redefining what it means to take ownership of your health.

This is a story about missed care, breaking through fear and stigma, and the power of asking one more question.

Remember: “stable” doesn’t always mean supported.

Listen, rate, review, and subscribe wherever you get your podcasts!

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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates and voices from the thalassemia community. 

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Thal Pals is sponsored by @Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

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This podcast is not intended as medical advice. Please consult your healthcare team with any treatment-related questions. 

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