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All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Through Our Eyes Two Disabled Dudes
Shows All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Through Our Eyes Two Disabled Dudes AboutAdvertiseContact
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Hemophilia in the Real World: Patient Engagement in Registries & Data Collection
Hemophilia in the Real World: Patient Engagement in Registries & Data Collection
Keith KornelukJuly 31, 2025
I’m Fine. This Is Normal. Old Faithful Works for Me! Mental Health Challenges to Progress
I’m Fine. This Is Normal. Old Faithful Works for Me! Mental Health Challenges to Progress
Keith KornelukMay 29, 2025
Maybe We’re Not on the Same Page: Shared Decision Making in Hemophilia Care
Maybe We’re Not on the Same Page: Shared Decision Making in Hemophilia Care
Keith KornelukApril 24, 2025
Are We Measuring the Right Stuff?
Are We Measuring the Right Stuff?
Keith KornelukMarch 27, 2025
Health Literacy is Health Equity, and It Matters
Health Literacy is Health Equity, and It Matters
Keith KornelukFebruary 27, 2025
Global Advocacy at the Organizational Level
Global Advocacy at the Organizational Level
Keith KornelukFebruary 13, 2025
What We've Learned - Season 3
What We've Learned - Season 3
Keith KornelukDecember 13, 2024
The Future of the Comprehensive Care Model
The Future of the Comprehensive Care Model
Keith KornelukNovember 25, 2024
Chapters & Grassroots Advocacy
Chapters & Grassroots Advocacy
Keith KornelukSeptember 27, 2024
The Evolving Landscape of Novel Therapies for Hemophilia: What’s Here & What’s Coming?
The Evolving Landscape of Novel Therapies for Hemophilia: What’s Here & What’s Coming?
Keith KornelukAugust 29, 2024
Understanding & Preventing FVIII Inhibitors : An Enduring HA Research Priority
Understanding & Preventing FVIII Inhibitors : An Enduring HA Research Priority
Keith KornelukAugust 1, 2024
Lived Experience Experts: Taking Their Rightful Place at the Research Table
Lived Experience Experts: Taking Their Rightful Place at the Research Table
Keith KornelukJune 27, 2024
Caregivers and Novel Therapies - Alleviating or Replacing Concerns?
Caregivers and Novel Therapies - Alleviating or Replacing Concerns?
Keith KornelukMay 30, 2024
World Hemophilia Day
World Hemophilia Day
Keith KornelukApril 26, 2024
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
Keith KornelukMarch 28, 2024
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
Keith KornelukMarch 15, 2024
Hemophilia Gene Therapy Redux – The End of the Beginning?
Hemophilia Gene Therapy Redux – The End of the Beginning?
Keith KornelukJanuary 25, 2024
PTSD & Hemophilia
PTSD & Hemophilia
Keith KornelukDecember 28, 2023
The US National Research Blueprint (NRB)
The US National Research Blueprint (NRB)
Keith KornelukNovember 30, 2023
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
Keith KornelukOctober 26, 2023
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